When I first heard about therapeutic listening, I was very dubious. I didn't understand how wearing headphones and listening to weird sounds was going to do anything except seriously tick Billy off. Having completed the program now, we still can't conclusively say that his gains were specifically because of therapeutic listening, but I would call myself a tentative believer. Dave, for the record, is still skeptical.
There are few therapies associated with autism, though, where you can draw a direct correlation between what you do and changes in behavior. If we change Billy's diet and see an immediate derailment into tantrum-land, we sometimes start blaming something he ate. He could also, though, be tired, have taken a irrational dislike to the neighbor's cat which keeps showing up in our yard, or have a headache. Until he can really talk to us about what's going on in his head, we just give it our best guess.
The same thing is true about good behavior and gains in communication. We want so much to believe that any particular therapy is working. Or I should say, I do. Dave is comfortable in the permanent "It's BS till they prove to me otherwise" skeptic position.
So we look for a few things in any therapy: First, do no harm. We have to know that there's no downside before we try something. Secondly, does he enjoy it? We believe strongly in following his joy -- to the point that it does no harm. (He can find joy in riding his inflatable spaceship down the steep staircase but we do have to draw the line somewhere.) Finally, where's the science? We want to see a recent, reputable scientific study with real data -- which I then hand off to Dave to read.
Therapeutic Listening (a trademarked term but I can't figure out how to make that "R" with a circle around it) passed our test. The aim of this therapy is to help autistic kids, with underdeveloped nervous systems, differentiate the human voice from other noises in their environment. Based on what Dave explained to me -- and I could have some of this wrong; I majored in English lit and creative writing and I sometimes, admittedly, tune out when he's talking about science -- this specially filtered music and specially designed headphones help build up certain muscles in the ear whose primary purpose is to recognize the human voice.
You have to find a therapist trained in Therapeutic Listening to administer the therapy. Then you have to buy the special headphones. We ordered ours from Vital Sounds for about $145. And a CD player with a random play button and the ability to turn off the bass. There are about a dozen different CDs, ranging in theme from animal sounds to kid songs to Mozart; special sounds and clicks have been added to each one, and if an adult, with a fully developed nervous system, tries to listen to it, it can make you feel slightly dizzy or even nauseous. I got an immediate headache after about a minute of listening to "Mozart for Modulation."
But Billy didn't. He liked some CDs better than others but on the whole, he didn't mind sitting down for "headphone time" twice a day, for 30 minutes per session. Our OT let us rent the CDs for $10 a pop (if you buy them, each costs about $40) and each CD would last us two weeks. Billy hated the one with dolphin sounds on it (and who wouldn't?! That was two weeks from hell.) but loved "Peach Jamz," which was a series of upbeat kid songs to which he'd sing along. We worked in one 30-minute session before school, usually while he was eating breakfast, and one after school.
Kids are allowed to eat, ride in the car, or play with toys while listening. They can't watch TV or really interact anything with bright flashing lights or loud sounds. Ideally, he would walk around and play while listening, but we could never get him to wear the fanny pack into which the CD player inserts, so he mostly just sat and looked at books or played with table toys.
At the beginning of this therapy, he wouldn't even allow headphones to touch his head. By the end of the series, he had no problem with headphones -- but he still has strong resistance to hair washing, brushing or cutting. He has become much more verbal over the past six months, and his potty training has made significant strides. Six months ago, we were at our wits end with the tantrums and he had also started head-banging, which was alarming to say the least. Now, that is extremely rare. His connections to people are much stronger and his eye contact is much better. He said, "I love you, Mama," to me for the first time in December. He is more likely to look at someone when he's talking to them. Whether he looks up when we call his name is still a crap shoot, but it's better.
** BUT ** (And I want to put this BUT in bright neon letters!!) Therapeutic Listening (insert trademark here) is NOT the only therapy we've been doing. Far from it. We are committed to Floortime, regular occupational therapy, speech therapy, music therapy and Kindermusik. And I can't overstate the importance of going to school and learning from his peers and teachers. He attends pre-Kindergarten five days a week from 8:30 a.m. to 2:30 p.m. and he loves it.
Now that we've finished the Therapeutic Listening series, our occupational therapist has recommended we purchase the CD Billy really likes -- "Peach Jamz" -- and continue on a two-week on, two-week off schedule. Apparently, the nervous system can get too used to one CD if you listen to it every day.
We're thinking about it. We want to see if there are any changes in his behavior when we stop doing Therapeutic Listening (R with a circle around it here) for a while. If so, we may pick it back up in a month. I would love to hear from any other families who tried this therapy. And if you have any questions about it that I didn't cover here, please email me or post a comment. When we started, we were disappointed not to be able to find more experiences from parents online.
therapeutic listening
Thursday June 24 2010 10:45:36 pm
robin
From Amanda Broadfoot
Sunday June 27 2010 11:58:36 am
From Amanda Broadfoot
Therapeutic Listening
Sunday July 11 2010 04:39:30 pm
Vanitha
From Amanda Broadfoot
Tuesday July 13 2010 01:10:20 pm
From Amanda Broadfoot
Therapeutic Listening
Wednesday July 14 2010 07:01:49 pm
Vanitha
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