LIFE IS A SPECTRUM

Some days, living in the gaze of my gorgeous children, I really wish that life had a rewind button. Or at least that button on the DVR remote that lets you jump back 30 seconds: "Wait! Ignore that last thing I did! I can do better!"

Yesterday, we were coming out of the McDonald's drive-through where I managed to keep my cursing at the price of two cokes and a small fry under my breath for the most part. Billy gets a treat when he does particularly well at therapy or school, and inevitably, the treats he asks for are "Coke" and "Fry-Fry" (French fries). He could easily say "French fry" at this point but we continue to say "fry fry" in our family because we think it's cute ... and to be honest, half the time I forget that it has a different name. I even once, flustered, asked for "fry fries" at the drive-through.

So we're coming out, stopped at the red light, and I'm juggling my Diet Coke and my cell phone charger. And I see a man out of the corner of my eye, holding a sign and clearly asking for money.

A million things run through my mind at a moment like this, and all of them make me sound a little crazy. I worry that if I start rifling through my purse for money, the light will turn green and I will hold up traffic. I worry -- I kid you not, this goes through my head -- that other cars will think I'm showing off. I worry that I'll get his attention and then find that I don't have any cash. I worry, to a lesser degree, that the person might be dangerous and try to car-jack me. In broad daylight. In front of all these cars that I'm sure are bad-mouthing me for being a self-righteous show-off who holds up traffic and is kind of asking to be car-jacked.

Well, yesterday I came to my senses and realized that I had just spent nearly five bucks on two cokes and a small fry, and this guy might not have anything to eat. This might be one of those moments when I could talk to my kids about giving to others. So I scrounged up a couple of dollars, tapped my horn, and saw out of the corner of my eye that he was walking over.

"Billy," I explained to my son, who was happily stuffing his mouth with fries and slurping on his Coke in the back seat, "this man doesn't have any money for Coke or fry-fries, so why don't we give him some? We've got plenty."

"We've got plenty," he repeated, seeming to agree.

The entire time, I had never really looked at the man, and by that point, he was at my car window. I looked up, into his eyes, and I froze.

He clearly had Down's Syndrome. What was a mentally challenged person doing begging for money in front of McDonald's? I was outraged -- at someone, though I didn't know who. Weren't there people who were supposed to be taking care of him? Wasn't there an agency in charge of this?

But all I did was reach through the car window, hand him two bucks and drive away. After all, the light had turned green and people were starting to blow their horns.

As we drove off, Billy looked back --at the man, I guess -- and said something like, "No coke."

The whole drive home I was edgy and unsettled. There was a time when my greatest fear was that my autistic son might end up unable to care for himself as an adult. It certainly happens, and there are plenty of parents who deal with that nightmare thought every day. Now we're pretty certain that Billy is going to be fine, to be able to communicate normally and catch up with his peers within a couple of years. And even if he were more severely challenged, God forbid, he now has a loving sister and two beautiful cousins who would never, I know, let him end up alone.

I would love to tell you that by the time I got home, I immediately sprang into action and tracked down the relevant agency or homeless shelter and got that man some help. But I didn't.

By the time we got home, I was more concerned about the fact that Billy had emptied his fries all over the back seat, Willow was screaming bloody murder and needed a diaper change and life went on.

In fact, I forgot about him. I forgot about him all afternoon, and all night, and until this morning, when I was emptying the trash and saw the McDonald's bag, I hadn't given him another thought.

I immediately thought of all the things I could have done, a million ways I could have helped and shown my kids that some things are more important than a honking horn or fries in the back seat.

But the morning bedlam of the Broadfeet had already ensued and we were frantically trying to get Billy's breakfast, listening therapy, Floortime and dressing completed before the 8:10 a.m. go-to-school deadline.

After he and Dave were off, I did finally manage to call someone. There is a church across the street from that McDonald's, so I looked up the number and gave them a ring. When I explained what had happened and asked that they keep an eye out for the man, the lady on the phone was very nice. She said she knew just who to call and would see to it that someone got him the help he needed the next time he showed up.

I hung up the phone, relieved. Was I relieved because I believed the man was getting help or because it was now someone else's problem? Hard to say.

I write a lot about autism advocacy and for obvious reasons, Dave and I are very motivated to help kids with challenges get what they need and deserve. But adults with mental challenges need advocates too. They aren't as cute, and they may be harder to help sometimes, but I got a well-needed wake-up call about just what happens when they slip through the cracks of the system.

Setting an Example

I have often discussed this very thing with other ASD parents; if the statistic that 1/150 kids have ASD is accurate, then how is our society going to cope with the special needs of so many people 20-30 years from now? I worry about EJ b/c he does not have siblings or cousins, just a small, tight-knit group of adults who love him more than life. We are currently changing our will to set up a trust for him and we have also changed some of our retirement goals to include a fund for him that he can access when he turns 25. We still have a 529 plan that we contribute to for his college, but we also recognize that we would be remiss if we didn't set up something to make sure that he will ALWAYS be provided for, financially speaking.

I think one of the most worrisome things about having a child with ASD is that we know that we are not going to be able to kick our baby "out of the nest" when he turns 18 or 21 or ever! Suddenly, our ages and our health habits take on a whole new dimension because it is not just about us getting him to independence at 18; it is about getting him to independence (one day) AND making sure he will always have someone to watch over him when we are no longer able to.

Living long and well

That is such a good point about how our age and health habits take on new significance. David and I have been talking about that same thing. We need to keep ourselves as healthy and active as long as possible so we're there for him as long as he needs us to be.

We're planning to have a financial planning meeting soon too, now that we've got our house-buying out of the way, so hopefully, we can get prepared for the most extreme scenario and know that no matter what, both our kids are cared for. It's a horrible thing to have to consider, but it has to be done, and parents of ASD kids can't afford to wait. It's not just a matter of "Who will take care of our kids if we're gone" but also, "Is that person educated about ASD? Capable of dealing with everything that goes with it? On the same page with us about goals, etc."

Thanks so much for sharing your experience.

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Floortime/DIR is our primary therapy protocol for Billy. "Protocol" makes it sound like something instigated by Jack Bauer at CTU, but the great thing about Floortime is that it's more of a "big picture" view, inside which you can continue with speech therapy, occupational therapy, which we're also doing.

Developed by Dr. Stanley Greenspan, Floortime/DIR therapy (DIR stands for Developmental, Individual differences, Relationship-based) is all about creating moments of joy during which you communicate with your child on their level, following their lead. Rather than try to force them to perform a series of tasks, like stacking blocks or sorting objects, your goal is to get the child to connect with people, to desire to communicate. And you create that desire by following their joy.

For instance, if Billy wants to open and close doors repeatedly, rather than try to stop him from doing that, we open and close doors with him. And when he's comfortable with us playing side-by-side, we take it to the next level, creating a "playful obstruction." Dave created the "Open the latch, Daddy," game, putting his own hand on the door, and requiring Billy to ask him to release it, thereby bringing him into the moment.

A couple of great things happened as a result of adopting the Floortime mindset: We surrendered the frustrating process of trying to get him to stop opening and closing doors (which upset him and us) and we connected with our child. I was amazed at how much fun it was to open and close doors the first time those big blues eyes looked up to me and Billy smiled as if to say, "You like this too? Isn't it great?"

We want to teach him that it's more fun, fulfilling, desirable to be connected to people than it is to be lost in his own world. And over the past few months since we first read Dr. Greenspan's book, Engaging Autism, at the suggestion of our occupational therapist, Kathy Merydith at TMH, we have seen huge strides in Billy's connection to people.

He has started reaching out to other children on a regular basis, wanting to play with them, rather than by himself. Some of his social skills need a little honing, but after all, he's still just three years old.

If he runs into another room in the house, he'll call, "Mama, where are you?" In the past, I wasn't even sure if he thought about me when I wasn't there. He regular takes my hand and demands, "Play castle," meaning he wants me to come with him and play with the fort he got for Christmas. And then a few weeks ago, completely unprompted, he threw his arms around me and said, "I love you, Mama."

Now let me put up a big warning sign here: I can't say that Floortime caused my son to say "I love you." We're doing a lot of things, and also, he's getting older. One of our primary frustrations is trying to figure out what works, what doesn't, what therapy (or lack thereof) is resulting in a particular behavior, either positive or negative. Within our Floortime "big picture," Billy has speech therapy (3 times a week at school and once a week in private clinical setting), occupational therapy (once a week at school, once a week private), therapeutic listening (twice a day, 30 minutes per session), music therapy (once/week) and Kindermusik (www.kindermusik.com, therapy for the whole family!).

When I say these therapies operate within the Floortime big picture, I mean that we make sure our goal in every setting is to encourage his connection to people, create moments of joy, and develop his ability and desire to communicate.

That being said, Floortime works (at least, for us) and it works every time. I know that, because my son looks up at me, joy on his face, and makes some new gain in communication every day. Because we're doing the things he wants to do -- opening doors, playing fort, sifting dry rice through our fingers, riding the roller coaster that Nan got him for Christmas (what kid wouldn't like that?!) or simply running around the yard non-stop screaming, "He's getting away!" -- because we're following his joy, he wants to communicate. As a side note, he's almost completely stopped opening and closing doors, opting instead for more creative play.

The upside to this therapy: you can see almost immediate results, depending on the severity of your child's communication challenges and neurological issues, however subtle. Because Billy is highly functioning and very verbal (though most of his speech is repetitive), we get a lot of immediate reward and feedback from this therapy; I can imagine it would be significantly more frustrating with a non-verbal or non-responsive child. By all accounts it will still work, but the gains may be slower than what we've experienced.

More upsides: you can practice Floortime anywhere, as long as you are engaging your child, following their lead and expanding their communication; and once you learn the basic theory, you can do it yourself (essentially, it's free -- the only "training" we have at the moment is a careful reading of Dr. Greenspan's book), but it's certainly more effective if you also have an OT or other therapist skilled in Floortime who can help coach you during sessions, brainstorm new ideas, etc. Both our OT and speech therapist are Floortime-trained, and we also regularly turn to our virtual friends on the Yahoo! Floortime Group with questions and for support.

There are also a couple of great websites that offer training, online and DVD-based, message boards, documents that can help you with everything from preparing for your IEP meeting to locating a Floortime-trained professional. Floortime.org is the website of the Interdisciplinary Council on Developmental and Learning Disorders, founded by Dr. Greenspan and Dr. Serena Wieder and is really just a wealth of great information. StanleyGreenspan.com also offers courses in child development, a selection of Dr. Greenspan's books, and information on the latest research and articles published.

OK, now the downside: If you follow Dr. Greenspan's guidelines, you'll be doing eight Floortime sessions per day, 20 minutes per session. That's in addition to school, organized therapy, etc. I can't say that we hit that goal every day, or even most days. Also, you're supposed to work toward four play dates with a peer each week. We're not there yet either.

Sometimes the book can be a bit vague about how to accomplish certain goals, like how do you follow the child's lead if he keeps flitting from one activity to the next? How exactly do you know when your child is ready for more imaginative play? When it comes to these kinds of specific answers to some of the vague generalities in the book, I've always found the answer in my kid. And to his credit, Dr. Greenspan says that when in doubt, take a step back and watch your child. What is he doing? Where is his joy?

Our plan is fluid, dynamic and ever-changing. But for the first time in a long time, I feel like everyone on our team (and they're a wonderful group) is working toward a common goal. And at the center of that goal is a beautiful, intelligent and thoroughly fascinating child named Billy.

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billyjammies

Keeping Billy clothed at night has been an ongoing battle. Within 30 seconds of us closing his bedroom door at night, he can be completely undressed, pull-ups off and singing merrily about the whole experience. We have gone through this cycle for hours at a time at night, and then restarted it at about 2 a.m. if he happens to wake up to use the bathroom.
The first step was giving up on two-piece pajamas and going with zip-up footie pajamas, which came increasingly difficult to find as he got bigger. But we've found, with the help of family and friends who are always on the lookout, size 5 and 6 footies. (Billy is 3, but tall for his age.)

Obviously, once he's totally potty-trained -- and we're making significant progress on that front -- this will be less of an issue, but for the time being, we had to find a solution. We were laundering complete sets of bed sheets and blankets as much as a couple of times a day.

The zip-up jammies worked fine to start, because he didn't have the fine motor skills to operate the zipper. Well, that didn't take long. On the off chance that you're currently eating your breakfast or lunch, I won't describe what we encountered the first day we found out he could operate a zipper. The horror ... the horror.

So then we moved to a diaper pin skillfully inserted through the zipper pull at the top and pinned to his jammies. Within three days, he could unfasten the diaper pin. Even more remarkable, one day we came back in and found him out of him pajamas, naked, with the PJs stretched out on the bed next to him, pin still fastened at the top. I guess little Houdini shimmied out through the neck opening!

Thanks to the great advice of my fellow bloggers at Both Hands and a Flashlight, we tried putting a shirt -- one size too small -- on over his jammies, which were still pinned at the top, underneath the shirt. Success for almost a week!

Then Billy learned to reach under the shirt, unfasten the pin without looking, unzip his jammies (while still wearing the shirt), step out of the feet and remove his pullups. He would run around the room, trailing the jammie feet behind him like a half-dressed Superman. And I was starting to think he actually did have super powers. It also occurred to me that perhaps we should notify the school that we could check off "fine motor skills" on his IEP and consider that goal "achieved."

After redressing him three times last night, I had a thought: turn the pajamas around backwards, zipper going up the back. But then, I thought, the feet wouldn't work. So I cut the feet out. I also cut a little notch in the neck so the neckline wouldn't be uncomfortable for him.

So I redressed him, pajamas on backwards, zipping up his back, pinned at the top with a diaper pin. Small shirt went over his head. And he laid down and went straight to sleep. And slept through the night!

I'll keep you posted, but if he gets out of this set-up, we're taking him on the road.

Necessity is the mother of invention!

Sounds like we had one advantage in that the J-Man hasn't quite grasped the concept of zippers yet. The bulk of the fleece sleeper + long-sleeve shirt makes it hard for him to reach in there anyway because it's all bunched up, but the zipper is small and a bit stiff too. So between bunched-up sleepwear, a difficult zipper, and a few fine motor challenges, his nighttime ensemble either proved too much for him to Houdini out of or he just gave up on it. We had thought about the backward sleeper solution, but like you we'd have to cut the feet out and since he refuses to wear socks and it's cold in the house, we put that idea aside for the time being. Besides, he was getting out of his sleepers without unzipping them (!), so we were skeptical backwards would have even worked. The long sleeve overshirt was the revelation for us - born from desperateness turned epiphany one night. Seems like both of us engineered good solutions right for our kids. Yay for us!

Taking off pajamas

Take a look at the Little Keeper Sleeper. They make zippered back pajamas from size 18-24 mo to 5T. Their locking system and non stretchable neck prevent escaping.
Check it out at : http://www.littlekeepersleeper.com

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Two

2 = The number of hours of sleep I got last night.
2 = The number of sick children I currently have.
2 = The nights in a row that Billy has had nightmares.
2 = The number of times I can read "Goodnight, Blue" without wanting to throw myself into traffic.
2 = The number of episodes of Damages that are now, unwatched, saved on my DVR.
2 = The time I just set on my alarm clock as I head off for my nap.

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5. Craft projects from Dollar Tree
I thought I had really found a deal: three Valentine-themed craft projects for $1. At Michael's, a similar package would have cost $5 or more (I know, still not a fortune, but we're talking about something that will end up covered in glitter glue and probably stuck to the furniture. Not something I want to spend a lot on.) Anyway, I open the package of red and pink foam hearts and the room fills with the scent of cat urine.There is a reason why this costs is $1. And I'm still ripped off. No one wants a pee-scented Valentine.

Some things at the Dollar Tree are a good deal: Ziplock bags and greeting cards (check for misspellings). Steer clear of craft projects and anything with the word "meat" on the label.

4. Our renter
We're maintaining two mortgages at the moment, because we couldn't sell our house in Sunny Hills (another dislike: the real estate market) before moving to Tallahassee. We managed to rent to a guy who works at the prison (did we mention our old home was prison-adjacent?) who has complained non-stop about petty crap, been late with the rent every month and now has informed us this week he's moving out -- without paying his last month's rent.

If you have money problems, nobody understands more than us. I can put up with late rent, because the Lord knows, I've been late with mine in the past. But don't complain about the "taste of the water to me" as an excuse for not paying it. (By the way, anybody know any prisoner relatives with dull taste buds who might like to rent a house?)

3. Bad Dreams
Our family has been beleaguered by sleepless nights this week. Billy, in particular, like his mom, occasionally suffers nightmares. It breaks my heart, because he can't tell me what he's dreaming. He did (milestone!) manage to tell me one night "Dream!" when he woke up crying, so I think he's starting to understand what they are. I wish I knew what scares him.

My dreams are generally anxiety dreams: A recurring dream is that I'm performing and forget the words to a song. This week, I was in a bridesmaid's dress, aboard a jet ski, driving toward a volcano where my friend was getting married. I was late for the wedding, and I had forgotten the words to "The First Time Ever I Saw Your Face." I also honestly dreamed once that I was being chased very slowly by a murderous Thomas the Train (see #2 below).

Dave doesn't have bad dreams. In fact, he usually wakes both of us up laughing. On Tuesday, he dreamed that we hired Mick Jagger to do carpentry work. I won't get into the details, but suffice it to say that Mick Jagger is crap at home repair.

Evil Elmo

2. Demon-possessed Toys
My car is haunted by a missing toy cell phone. I know it's in there somewhere only because every time I hit a speed bump, I am greeted with the little ditty "Shave and a hair cut - two bits!" And somewhere in Billy's room "Evil Thomas" is hiding. This is a battery operated Thomas that decides to come to life between 2 and 3 a.m. and emit a sinister "chooooooo chooooooo" sound over the baby monitor.

The Elmo phone even looks demonic: It used to have cute Elmo eyes perched atop it, but my teething children scraped away the whites of his eyes, revealing the red paint beneath, making him look like Chucky's furry cousin. Occasionally, we will hear -- from somewhere in the house -- the phrase "It's Elmos's turrrrrn," in this creepy deep, battery-dying voice.

And this week's greatest dislike is ....

1. The three pounds I've gained since I stopped nursing.
Gone are the days (months, nearly a year ... sigh) when I could eat anything -- and I mean anything -- and not gain an ounce. Don't get me wrong; I'm not thin by any stretch of the imagination, and if I'd been truly motivated, I could have used the last year to LOSE more weight. But anyway, back to stupid dieting and step aerobics. Boo!

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5. Sleep Talkin' Man (sleeptalkinman.blogspot.com)
One sleep-talking husband + one voice activated tape recorder = hilarious. Thanks to this brutally honest couple, my new favorite word is "BADGERTASTIC!"

4. Damages
I am so excited that Damages is back for another season. I'm not sure how the members of this particular law firm manage to either kill someone or at least get charged with it every few months and maintain their licenses to practice, but I'm looking forward to seeing who bites it in the opening scene on Monday night. (FX Network, 10 p.m. EST; you can get seasons 1 and 2 on DVD.)

3. Both Hands and a Flashlight (bothhandsandaflashlight.com)
This funny, extremely well-written blog by the parents of an autistic four-year-old and new baby so inspired me that I started my own. I should wish to be half as good as this. Not only is the blog sharp and witty, but I've got more than a few excellent parenting tips from Tim and Mary. You don't have to have an autistic child to appreciate the humor, but if you do, you'll want to bookmark this one.

2. Burgundy Lincoln Continentals
Actually, if you were to look in my driveway, you would think I friggin' LOVE burgundy Lincoln Continentals. We now have two of them that look identical, and there is a perfectly logical, boring explanation to this, but I prefer to let the neighbors wonder about our bizarrely specific car obsession. I'm just so glad we have a second car, so I don't have to drive Dave back and forth to work anymore. (Subset of this like: Extra hour in my day.)

Panda Pope

1. Sloan, my lovely new niece
She just gets more beautiful every day, sleeps like an angel, according to her parents, and is gradually assuming the title of "World's Best Baby" from Willow (who has decided, this week, not to sleep). Sloan is so good, in fact, that I'm convinced when she's 16, she's going to cover herself in tatoos, buy a motorcycle, change her name to "BloodRayne" and declare herself a vampire.

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Oh, deliver me. I do not have words for how much I hate Thomas the Tank Engine. There has never been one single watchable episode of that blasted British-born stop-motion irritant. And yet, Billy and millions of other kids are crazy for it.

I don't get it. It's like baby crack. Are there subliminal messages in it? Are all the toddlers in the world going to rise up and take over upon a single command from Sir Topham Hatt?

I try to get Billy to watch an episode of Scooby Doo where the gang solves yet another thrilling mystery about a ghost at an amusement park: No interest. He would rather watch an interminable 5 minutes about Thomas learning not to go too fast over the bridge.

I've tried to analyze the world view of the creators (originally Rev. Awdry) to find a clue to its success, but frankly, I'm baffled. The trains spend most of their time fighting with one another over petty crap until Sir Topham Hatt (hilariously called "the Fat Controller" in England) threatens to scrap them for "causing confusion and delay." And this is better than Scooby Doo how?

In one episode, Thomas makes fun of Salty for his Scottish accent. Salty is sad. Emily tells Thomas to stop being mean. Thomas apologizes to Salty, who says, essentially, "That's OK, it was pretty funny." So the message here is ... it's OK to ridicule people with accents because secretly they like it? If you're funny enough, you can be mean?

The plots are mind-numbingly repetitive as well. That previous plot? The one with Salty and the accent? Well, you can watch it again, only with Gordon being smelly. Thomas makes fun of him for stinking ... yada, yada, yada ... Gordon says, "That's OK, it was pretty funny."

In the '90s, there was apparently an outcry about Thomas the Tank Engine being sexist -- because of all the male engines and only one female (I guess they hadn't seen the Smurfs). So they added a couple more female characters, including The Refreshment Lady. There's no point here; I just think it's hysterical that their answer to charges of sexism was to add a female character who serves everybody tea and food. Hail, Britannia!

This would all be bad enough if I could just turn off the TV and that would be the end of it. But as many of you know, Billy has a recorder in his brain with a limitless hard drive. If he's ever heard it, he can recall it at his whim. He could name all the trains -- Skarloey, Rheneas, Edward, Peter Sam, etc. -- before he would call me "Mama."

Bad enough to endure through breakfast, lunch, and dinner a word-for-word repetition of the episode in which Thomas tried to keep Percy from meeting Flora, but yesterday, while playing at his train table with Willow, he screamed, "You're causing confusion and delay!" at her, which made her cry. I don't know if she was afraid she was going to be scrapped or just didn't want to be screamed at, but something's gotta give.

We have every train, truck (oh yes, they have trucks now) and piece of building equipment that those geniuses at Thomas headquarters have dreamed up, including the special Christmas present train (from the episode where Thomas had to deliver the Christmas presents), the zoo train (from the episode where Thomas had to pull the zoo train) and the aquarium train (you see where this is going). It's gotten to the point that every episode is just one long commercial for the toys.

And then it hit me: That's their genius. They've taken a toy catalog and given it a plot -- barely. You can't act out the stories without all the pieces: the highest bridge, Sir Topham Hatt and his car, the roundhouse, the tea lady -- actually, I think most stories would survive the loss of the tea lady.

Movies and TV shows have been doing the same thing for years -- perhaps more subtly, as they don't usually employ the actual toy in the film, but consider how the Transformers movie franchise might have been different if they'd had to use actual Transformers.It's hard to imagine that making it worse.

At least Billy wants to act out the stories, imaginative play being an important developmental step. Theoretically, kids practice social behavior in miniature as they act out stories in play time. I cringe at the thought of him taking life lessons from Thomas to the playground; he has enough communication problems without screaming, "You're causing confusion and delay!" at potential friends. But then again, those kids probably love Thomas too.

Baby crack. That's the only explanation.

I hear you...

My kid JUST started getting into this, and I am pretty pleased about it. The show is slow and I'm not psyched that those little trains cost more than I've spent on clothes in the past year... but at least he's taking a break from kicking a football at my head.

Thomas

There's only one redeeming quality about the Thomas toys. When your kids are tired of them, you can sell them to other Thomas obsessed parents on Ebay for nearly what you paid. Just shipped a whole huge box out to some poor Mom in Wisconsin. But I am glad to hear I am not the only one who thinks Thomas is a bad influence. One of Max's favorite stories is where Thomas finds a secret passage way through the mountain, beats Gordon, and then taunts him mercilessly. Super. Another is where Percy ignores the warnings and breaks through an area of track cordoned off with caution tape and "Do Not Enter" signs to find the entrance to the Magic Railroad. Fabulous.

Thomas

Lori, that is hilarious! I look forward to the day when I can pack these little buggers off and make them someone else problem ... I would actually pay THEM to take them away, but it's nice to know that other unsuspecting mom's will fork over some cash for them (Lord knows, we've spent enough ...).

Hate!

I got here by googling "I hate Thomas the Tank Engine" :)

My little one is almost 3 and adores Thomas. I hate the show with a passion, but have had a rough pregnancy and have used my boy's love of Thomas to give myself a break physically. These trains are so horrible! I hate the nasty way they talk to each other, I hate how bad an example most of their behavior is, how repetitive the plots are, how entirely nonsensical the premise is ... I've found myself saying to my child, "Why are these trains autonomous? Why do they get to decide where to go by themselves? How are they switching the points? Why do they even have engineers??" At which point he looks at me blankly, of course. I don't really mind the toys so much (yet, anyway) ... but I'm really really sick of being asked to participate in playacting this particular show.

Anyhoo ... you're not alone in Thomas-hate :)

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ZHRRCI

I used to think I was busy. Really. I thought that if I didn't have time to see three movies a week, get my hair done, work out daily and spend some "me" time with a glass of wine and a good book, then life was really hectic.

Good grief. After I had kids, I started considering myself a success if I managed to brush both my hair and teeth in the same day.

When Billy got old enough to start climbing things, well ... if we both made it to bedtime without a trip to the emergency room, then good enough. My writing fell by the wayside a bit, as I barely had time to have a complete thought, much less write one down.

Things are starting to settle down a bit. Willow's 10 months old! She's big enough to stand up, but not yet old enough to work the baby gate (unlike Billy). Billy's schedule is very consistent now, with pre-K every day and therapy of some sort almost every afternoon. I'm averaging about 5 1/2 hours of sleep a night now, and I might even get around to vacuuming today.

My wizard of a husband built this website for me, and I've committed myself to blogging at least once a day. Not only is it a chance for me to start writing again, but it gives me an outlet for stress and a chance to communicate in some way with the outside world. As other parents of special needs kids will attest, you can get a little isolated sometimes. We got in the habit of avoiding social interaction for fear that Billy would have a meltdown, something expensive would get broken and other people would look at us as bad parents.

He's matured and grown by leaps and bounds -- and so have we. We still feel like we're inept parents about half the time, but I'm learning that that's not so unusual -- whether your child has special needs or is "normal," whatever that means.

We've been kicked out of one church and a few restaurants, but we've also learned that the people who count won't show us the door. They might (understandably) hide their breakables before we arrive, but they'll embrace both our children with open arms. Thank you all for that. You have no idea how much you mean to us, and just because we're complete crap at staying in touch with you, it doesn't mean that we don't appreciate all of your support.

And as soon as we have the time, we'll call you and tell you just that.

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I want to like Leverage. I used to like it ... I think. I've seen every episode. But I realized watching the ridiculous episode about fashion week and sweatshops that I always want this show to be better than it is.

I was excited about Timothy Hutton doing a TV show. I think he's a great actor. Or I used to... I think. I mean, he was in Beautiful Girls, Falcon and the Snowman, Ordinary People, and Taps! He was really good in the Nero Wolfe mysteries than ran on AMC for a while too.

But Leverage has started to feel like an acting workshop that he's leading -- and not a particularly good one. "Watch me channel a really camp German-ish fashion expert!" "This week's stereotype is a really demanding movie director!"

The show works best to me when he doesn't assume a role -- other than that of Nathan Ford, the brains behind the group of thieves-gone-good. When he struggled with alcoholism (a fairly short struggle, it must be said), faced off with his ex-wife, met his nemesis from his days as an insurance investigator -- the show seemed smart and believable, a decent heist movie in miniature.

But for now, I'm afraid this one's going to the bottom of my priority list on the DVR, behind Wonder Pets and that documentary about the fall of the Roman Empire that I never get around to watching.

I hear you...

I love him and love that he has a TV show. I think part of me doesn't even care what it is... while I have not seen every episode, I have seen a lot of them. I think a lot of the camp is intentional, but I hear you. Behind Wonder Pets, though? That's harsh!

LEverage

You're probably right about the camp being intentional. Maybe it's just that it's getting tired that bothers me. Don't get me wrong: When the show is good, it's very good. And I am a sucker for a heist story done well. I probably have my expectations too high, because I too love him and want him to be Emmy-worthy every week. But it's not his fault: Some of the scripts lately have been lucky to be Nickelodeon's Kids' Choice-worthy.

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When people meet Billy for the first time, they're often amazed at his memory. I have to admit, it's pretty cool to the writer in me to hear my son recite Robert Frost poetry. It's very soothing to hear "Stopping By Woods on a Snowy Evening" in his sweet little voice ... the first 500 times. At 4 a.m., over the baby monitor ... eh, let's just say my appreciation of poetry wanes a bit.

Lately, he's been all about Charlie Brown all the time, repeating lines from "A Charlie Brown Christmas" and the New Year's episode over and over and over ... complete with different voices for the different characters and all the songs, pitch perfect, every word in place. I didn't even realize that song at the beginning of "Charlie Brown Christmas" had words until he started singing them.

A few days ago, I kissed him on the cheek and told him, "I love you, Billy." He kissed me back, put his face very close to mine and said, "Happy New Year, Charles."

It's called "delayed echolalia," this endless repetition. And we're told that it's actually a good sign. It means he can talk, unlike some autistic kids who never develop verbal abilities. All children do it to some degree as they start talking; one mom recently told me that her first words were "We'll be right back after these messages." And as long as Billy starts to replace the repetitive talk with functional language -- and he's doing that already -- there's every belief that he can learn to communicate normally with time.

He repeats what he hears, and occasionally he gets it wrong. In the "12 Days of Christmas," the "eight ladies dancing" became "eight lazy dancers," and "five gold rings" became a plea to "buy gold, please!" -- maybe his own effort at economic stimulus. But I would say he gets it right 98 percent of the time. How many adults can recite all 12 days of Christmas?

There are plenty of times in life when such a perfect memory will be a real asset: spelling bees, the SATs, remembering his lines in a play, winning the final round of Jeopardy. I hope so, anyway, because that's kind of our retirement plan. He'll probably never forget his mother's birthday, to renew the tags on his car, or to turn his clocks back for Daylight Savings Time ... so he's already a few steps ahead of his dad.

In the meantime, we get to hear over and over again how when Leo Tolstoy wrote "War and Peace (the book Charlie Brown reads in 'Happy New Year')," his wife, Sonia, copied the book seven times by candlelight ... with a dip pen. And if you're afraid of responsibility, you have "hypengyophobia" and if you're afraid of cats, "ailurophasia," according to Lucy.

And on the bright side, in a few weeks, it'll be Valentine's Day and we can start over with "You're in Love, Charlie Brown."

Billy

Amanda, I did not realize that Billy had autism. I cannot conceive of the difficulties that must present you. You should contact Dr. Kelley Knapp-Kline at FSU-PC. She is a Psychology professor here and she has a profoundly autisitc son who is non-verbal. He is around 9 or 11 I believe. He is very destructive and she can having nothing but a mattress on the floor because he destroys everything in sight. She has to put locks not just on all the doors to the outside, but on his bedroom door as well. She said she even had to put locks on the kitchen cabinets because he will climb up and eat everything in the them! She is all about legislature for autism as well. Her email is chrismom928@yahoo.com. She might make a great support person for you. Feel free to tell her I suggested you contact her. Keep on blogging! You are such a good writer and I am enjoying reading your stuff. You need to submit your writing to an Autism magazine for other parents to read.

Beth

Thanks, Beth!

I really appreciate the contact, Beth. I will definitely get in touch with her. Dave and I have tried to get informed and involved about what's going on with legislation at the moment, and I'd love to hear her insight. I realize that we are very lucky with Billy. I can communicate with my child; he smiles at me and hugs me. I even had him throw his arms around me a few weeks ago and for the first time say, "I love you, Mama." My heart really bleeds for those parents who will never hear those words, who fight their battles alone with little support and pray every day for a cure that will bring their child back to them.

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