I have no idea what I actually look like. Oh, I have mirrors in the house, but those images are fleeting. Pictures on Facebook, though, are forever, and thanks to my sister's Photoshop skills, every member of our family has an incredibly inflated sense of our own attractiveness.

FamilyShot_close

Who needs to lose weight? I can just have Sami shave off a few pounds with a few quick clicks of her mouse. She can even give me makeup and fix my hair. She has, in the past, even cut and pasted my open eyes from one picture on to my head in another picture.

If you look through our family album, you'll think we have a whale of a time wherever we go. Our children don't cry. No one, of course, drop-kicked a pumpkin into moving traffic at the pumpkin patch. We enjoyed each ride at the fair equally, without a single meltdown. And Christmas morning was one magic moment after another with every present prompting a rapt, joyful expression captured on film. No one bawled at the sight of Santa; no one sang, "No more Santa! No more Santa!"

There is truth in the reality you see in my photo albums -- our family does have a great time together -- but let's just say it's not the whole truth.

Billyhairflying

I was thinking of this earlier this week as I thumbed through some old family photos that my mom had gathered together for me. Faded and slightly curled on the edges, there's a sense of unposed immediacy that I don't really see in the carefully cropped pictures of my kids. In one photo, my five-year-old head is half cut off and my dad's boots are visible in the bottom right-hand corner. In another I seem to be more interested in my mom's cute hat than the camera. In another I'm sitting in my crib surrounded by toys, some of which I can actually remember loving. Half the pictures have someone's eyes closed, and in one, a thumb obscures the bottom-right of the image but they capture more than smiling faces. They capture moments of a family's life.

There was a time when getting a perfect shot of a child involved a trip to Sears and a half-dozen backdrops. I'm not sure what a 3-year-old is doing alone in a mountain chalet, but I can remember at least one of those shots framed on a wall in my childhood home. The rare beautiful family snapshot was complete luck, unless you were a trained photographer. Without digital cameras, you had no idea what the pictures looked like until you received the developed roll, a standard 24 or 36 shots, and you didn't have to pay for any disasters, like a thumb over the lens.

Destin_BillyPlayground

Billy used to be a complete ham for the camera. There are pictures of lots of pictures of him smiling for the camera in his first year, still quite a few after his first birthday, fewer after he turned two, and after he turned three, it's a real rare, golden moment when it happens, but when it does, it's magic.

We tried to take him to a professional photographer when he was 18 months old, and though she got some great shots, it was a workout for all of us. As his inability to sit still and make strong eye contact got worse, professional photo sessions really became impractical for us. It takes a special person to nurture that brilliant smile into being and not lose their cool when he tries to dismantle the mountain chalet backdrop.

Some photographers won't even work with special needs kids. I recently heard that one mom of an autistic child, frustrated by dealing with photographers, began training herself to become a pro. The special needs community needs her. I doubt it's her goal, but Sears needs her. I nearly got into a fist fight with a Sears photographer who pulled Billy's arm during an aborted session before his third birthday. You don't mess with a pregnant, hormonal woman and her autistic two-year-old ... there's nothing about that which will end well. I will cut you.

09SCHOOL-PIC_SMALL

Maiming of strangers aside, though, I have learned to manage my expectations where photos of Billy are concerned. On the day of his school picture, I went with him, brought puppets and danced around like an idiot to get that gorgeous smile. The school photographer was awesome and obviously liked kids. He didn't even raise an eyebrow when I got out in front and sang the opening line of Billy's favorite song at the time: "Fly in the buttermilk..." As Billy responded, "Shoo fly, shoo!" I screamed, "GO!!!!" and pointed at the photographer. Startled, he snapped. Success!

When I'm on my own, I've learned to photograph Billy in action, and I don't expect every picture to show him smiling straight into the camera. As the photos from my own childhood have shown me, sometimes the most precious images might be missing an arm ... or a head. Or have a pair of comfortable boots in the corner or a well-loved, raggedy toy center stage. We don't love them less because the photography isn't perfect -- as long as they show us the people we were, the people we are, and the people we love.

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Special Needs Children

I love your article! I have two children now ages 17 and 15 who were diagnosed with Cystic Fibrosis when they were the ages of 2 and 3 months. What a horrible time in my life that was. However God saw fit to bless my family and I firmly believe they were healed of this horrible disease which would have took our small children out of our lives. I too remember taking photographs of my children while they were so sick as wee ones. It was hard to get a smile out of my daughter who is the oldest of the two. We often thought we would never get any with her smiling. I realize this isn't anything like autism. But it is the same no matter what the illness. My children are strong and healthy now after battling illness for most of their elementary years the doctors have told us there are no signs of CF since they were ages 7 and 5. Praise God for miracles!

I wish you and yours the happiest of times and photos full of laughter. Keep up the excellent writing!

Connie Welch

Photographing an Autistic Child

EJ followed the same path. Beautiful baby pictures until one year old, then nada. You can see the total stress on our faces for the one year family photo. It became progressively worse for years 2 and 3 (with video as well). I always swore we would have family photo taken every year, but I gave that up, especially with the cost involved and the inexperience of the photographers. For his school pictures this year, we actually had him do the redo b/c the first one looked so bad. Unfortunately, that was after battling 8 days with stomach flu, so he looks like a thin little ghost, but at least there was a smirk on his face.

The good news? Just in the last few weeks, he has started really concentrating when I ask him to look at the camera and smile. Of course, I have learned to be ready to go with the trigger finger lest I miss out on the one good shot. But he does seem to be trying; he seems to recognize that he has to "try" to smile and look at the camera. It simply isn't this automatic thing he does like other neurotypical kids. Almost like scripted speech within context; he has to concentrate on what he is saying and be sure that it makes sense. That's fine by me; here's hoping to a family picture for 2010!

Photographing an Autistic Child

Connie, what wonderful news about your kids' clean bill of health! That's the news every parent wishes for ... Please keep us updated on how they're doing.

JD, I totally feel your pain with the effort our boys put into getting their photo taken. Billy really tries too. And he'll smile, but he can only hold the gaze of the camera, looking directly at me, for a fleeting moment. He'll even say, "Smile!" and be smiling, but he's looking in a different direction, as though he's posing for someone else, after about one second. But I go ahead and snap because I want him to feel positive about the experience and eventually, maybe that gaze will stay with me longer :-)

Photos

This is such a great post. I always put so much pressure on myself to get a great Christmas card shot. We had the greatest photo sitting EVER last Christmas at JC Penney that resulted in the picture on my blog, plus a ton of other great shots. I've told everyone that I'm now done because I will never top those. But I'm sure when November rolls around I'll start up again.

I loved your comments about everyone else's pictures on Facebook, etc. Let's face it, we're only ever going to see the good ones. There are certain friends that I only keep up with via Facebook and annual Christmas cards, and if you go by that you'd think they had the perfect life. Then when I finally do talk to them, I'm always shocked if they are expessing anything less than that, which they often do. I guess we're all guilty of that to some extent....

From Amanda on Photos

So true. I have my "facebook life" and my real life.

Now that I have a blog, though, I have a slightly different approach to photography. There's more reason to keep the not-so-perfect photos to illustrate some point now or in the future. And I purposely capture moments that I think might be illustrative of a particular point of parenting a special needs child. I LOVED your post about blogging and how our kids will one day exact "Hoff-style" revenge on us! And the idea that he might one day be embarrassed, angry at me and conspire to turn the tables completely thrills me.

Your gallery of Audrey photos totally cracked me up. I have soooooo many of the "Please no more picturrrrrrzzzzz" shot :-)

Smiles

Ahhhh. What a post. I don't think I can say enough about it. It's quite simply lovely. As I often do when I read your posts, I laughed through a rimful of tears at this one. You're so full of humor and poignancy and swelling love in every post about Billy--it just makes me proud of you. And when I read about a milestone Billy has reached, I always know he's reached them for two reasons: 1) his resounding spirit, and 2) his excellent, devoted, supportive parents.

In people, I admire courage and honesty more than just about anything. You have both in spades, friend. :)

I should know better than to surf at 2:30 am


After years alone and an abusive first marriage, I was blessed with my son G, born two days before my 43rd birthday. Absolutely beautiful, with luminous red hair. I had a p&s camera that was advanced for 2004, but which mostly failed when asked to capture him: shutter lag, low ISO = long shutter. I started out wanting a flash, then uphold myself to a DSLR, which won spousal approval when G was about 7 months. Despite ongoing gear problems, I've managed to get some shots of him that justified the $thousands, but those have become less frequent as he's become older (almost 3 now): he's fast and energetic, and increasingly difficult to elicit a smile from. My suspicions were confirmed about six weeks ago with his ASD diagnosis. Had I known a handful of years ago that older dads and math / science types are more likely to sire ASD kids …

But here I am, tears dripping onto my iPhone as I read for the first time of others' experiences with photographers, and the love you have for your kids as I have for mine.

Tomorrow I can post some links if desired. I've actually thought of a side business shooting ASD kids.

Total 7 comments

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