LIFE IS A SPECTRUM

Billy_Swing

When I first heard the “A-word,” I was devastated because I thought my child was going to turn into some kind of robot. That he would refuse to hug me, become incapable of laughter, never have friends, never know love. That's what I thought autism meant. Because at the time, I had no idea what life on the spectrum would really be like ...

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INT. BEDTIME – LAST NIGHT

Billy is tucked into bed. My hand is on the light switch when he starts whimpering.

Me: Billy, why are you crying?

Billy: I’m crying because, because… because Mama is leaving.

Me: I’m just going to my room. I’m not going very far.

Billy: Can you hug me?

Me: Of course I can hug you.

And I jump up on his bed next to him and give him a big bear hug.

Billy: (muffled, into my shoulder) Can you hug me for a hundred minutes?

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We didn’t hug for a hundred minutes, but we hugged for a long time, long enough for me to remember how afraid I’d been that he would lose this, long enough for a tiny little spark of fear to tickle at the back of my mind: Would a day come when he wouldn’t want to hug for a hundred minutes?

Of course it will. And most mothers fear that day.

If anything, Billy's autism is more about a surplus of emotion, and how to deal with it, rather than a lack of emotion. Most of the autistic kids I know seem to be that way. Billy's emotional maturity is closer to that of his 2 1/2 year old sister than his kindergarten peers. He can go from zero to sixty -- happy to to miserable -- in about three seconds flat. But he usually gets over it just as quickly.

And he’s becoming more independent every day. This new wave of separation anxiety is caused in part, I think, by the fact I’ve been working more. I'm a working mom now, and there are a couple of afternoons each week that I’m not the one to pick him up at school. I put in a full work day each Friday now, and a wonderful grad student in the speech pathology program at FSU walks him home and plays with him for a couple of hours.

I worry about being away from him. I stress that he stresses. I debate about the cost-benefit of having more money to put into therapy and extracurricular activities vs. being home with him full-time.

I’ll be honest: Working is good for my sanity. When I stayed at home full-time with both kids – which I did until fairly recently – I was a crazy person. I am not cut out for that job, because I got steadily crazier with each passing day. I never felt like I was doing a good job, never felt like I finished anything … before it got covered in something sticky and I had to wash it or glue it back together or throw it away when no one was looking. Anybody who thinks stay-at-home parents have an easy job needs a punch in the face ... and a week spent as a stay-at-home parent.

Unlike parenting, at the office, each project has a beginning, middle and end. Even the hardest job just seems so ... easy. Occasionally, I get told, “That’s really good work!” instead of having a small, running, naked person scream, “I don’t want to poo-poo!!” at me. To date, no one at my office has screamed at me because they didn’t want to poo-poo.

Of course, none of them want to hug me for a hundred minutes either.

Reader Comments

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very good

I debate about the cost-benefit of having more money to put into therapy and extracurricular activities vs. being home with him full-time.Nice information, many thanks to the author. It is incomprehensible to me now, but in general, the usefulness and significance is overwhelming. Thanks again and good luck..

Mr

Good day! I could have sworn I’ve been to this blog before but after browsing through some of the post I realized it’s new to me. Nonetheless, I’m definitely happy I found it and I’ll be bookmarking and checking back often!

I just found your blog (thank you Twitter! Thank you FSU Film!). This is a very heartening recount of your "hug" time and it made me feel like I was right there experiencing that wonderful moment with you. Will send supportive thoughts as you continue on your "working mom" journey. I still struggle with it every. single. day. (And my kids are 12 and 15). We all just have to help each other out!!

Mr

I'm the stay-at-home parent here, and you sound perfectly sane to me. Despite all the chaos, you are all to well-grounded in reality.

MR. Jen

I think you are right about parents that have never been at home full time.....

Mr


I'm the stay-at-home parent here, and you sound perfectly sane to me. Despite all the chaos, you are all to well-grounded in reality.

I miss you guys! Hopefully I will come to visit tally soon and be able to see the kiddos!

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Well...Congrats on creating me get all teary eyed at the start of this post and then ending it on a cheerful note that place a smile on my face.

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Are you tired of me yet? Probably. I'm in danger of becoming as over-exposed as Miley Cyrus this week.

monkeytyping

But seriously, I am super-excited to be guest-blogging in two different places this week, because both places are among my favorite online reads:

SouthernMOMentum.com
This great site is written by several Southern moms for Southern moms. Their witty take on all things motherhood will have you laughing, occasionally sniffling, and always apprised of unique shopping opportunities. I've written a piece for them, "Can we really have it all?", because the choreography involved in juggling full-time motherhood and (theoretically) part-time working has been on the challenging side this month.

36x37
Maura Bowen is an excellent writer who has given herself 365 days to do 36 things she's never done. I love the concept and I adore her honesty and beautiful writing style. She blogs about her journeys and occasionally features writers she likes. I was honored that she chose one of my posts about Billy, "Dream a Little Dream," to use on her site.

If you get a chance, check out these awesome sites this week. I guarantee you'll be reading them long after my posts have disappeared :-)

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Thanks!

Thanks so much for the shout-out! I'm so glad we've connected, and am grateful you were willing to post on my site. :)

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Long ago, in a galaxy far, far away, I had a career. I know that to be totally PC, I should add the phrase “outside the home” but I don't look at my family as an alternative career choice. My kids are a higher calling.

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But I used to work full-time, all day, every day, outside the home. I was a magazine editor for years and a journalist and a screenwriter. I once interviewed Rick Springfield -- admittedly, it was on the set of a truly poor Sci-Fi Channel film, but I was so excited I was shaking. (FYI, he's not all that keen on answering questions about "Jessie's Girl" or "General Hospital.") I once did the can-can with Sulu and Chekov from the original Star Trek. I even interviewed the guy who wore the R2D2 suit in Star Wars.

I don't write this to name-drop – because come on, this would be the lamest attempt at name-dropping in the history of journalism. But I loved my job.

When we moved back to Florida, I was thrilled to get a job as editor of Emerald Coast Magazine and eventually, Bay Life. My job was to get to know people and go to events in Northwest Florida. I wrote about everything: real estate, jewelry, crime, health, entertainment – you name it.

If you had asked me back then – as baffling as this thought is to me now – I would probably have told you that I didn't care if I had kids or not. Motherhood wasn't something I thought about that much.

Billy changed everything. When he came along, I had had every intention of going back to work at the end of maternity leave. But then that three months whizzed by and I couldn't let go of him. I couldn't let go of his tiny feet or shake his firm little grasp. I couldn't imagine missing a single smile or not being there to pick him up when he cried.

At first, I tried working from home with him. People had told me, "It's easy at this age. They just sleep all the time." Maybe they were talking about cats, because neither of my children could ever have been described this way.

I freelanced for a while, but as Billy's developmental delays became more apparent and the demands of treating them increased, I let go of the final shreds of my career. A couple of little jobs came up here and there but it was hard for me to commit to even the simplest assignment, because I never knew when our life was going into a minor tailspin, and to be honest, I was super-stressed and finding it difficult to think about anything except Billy's autism.

I'm a control freak. I'm a planner. I like to organize things and make to-do lists and feel like I've accomplished something at the end of the day. I think that made me a good magazine editor. But parenting an autistic child is not something you can do from a Day Planner -- believe me, I tried.

That doesn't mean there wasn't plenty to fill up my Day Planner. Quite the contrary. We had doctor visits, tests, therapy appointments almost every day. From a practical standpoint, it just made sense for one of us to commit to chaffeur duty.

Slowly things started to change. Billy started preschool, Willow arrived and turned out to be world's easiest baby, and opportunities for me to write started to pop up.

This blog, started earlier this year, was my first attempt to dip my toe back into those waters. I was worried, at first, that I would have nothing to say. But when the floodgates opened, I found it difficult to shut up – which is probably one of the reasons I write some of the longest and most rambling blog posts on the Internet.

Then I got hired to be “Tallahassee Motherhood Examiner” for Examiner.com. That makes it sound like I go around examining people's motherhood credentials, but it actually just means that I write about parenting stuff at www.examiner.com/x-43368-Tallahassee-Motherhood-Examiner. I love doing that: I can now turn any afternoon with my kids into a tax write-off. Also, I get paid based on traffic, so if you check out my page, you're actually helping pay for Billy's expensive summer camp. Thanks! That kind of support entitles you to one macaroni craft or finger painting of your choice ... while supplies last.

My kids will never be impressed by my career. I can only imagine the baffling stares I'll get when I one day try to explain who Rick Springfield is. Or that there used to be a different Spock than the one played by the bad guy on “Heroes.” Maybe if had ever interviewed Lightning McQueen or Abby Cadabby it would be different.

But I make a mean batch of Rice Krispie treats, and if my life can serve as any kind of example to my children, I hope it shows them that sometimes the greatest miracles in your life are the biggest surprises; that you're capable of more than you think you are, so keep evolving; and the most exciting conversations you'll ever have will take place, not on movie sets, but in some of the quietest corners of your life with the people you love most.

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